【Hacker News搬运】MomBoard：为患有健忘症的父母提供电子墨水显示屏

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Title: MomBoard: E-ink display for a parent with amnesia

MomBoard：为患有健忘症的父母提供电子墨水显示屏

Text:

Url: https://jan.miksovsky.com/posts/2024/11-12-momboard

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Post by: pabs3

Comments:

angrygoat: What a beautiful use of technology to uphold someone's personhood, and let them know they are loved, despite (and with regard to) a profound injury.This reminds me of a desire I've had for a long time: a simple, wall-mountable eInk device that could be configured with a URL (+wifi creds) and render a markdown file, refreshing once every hour or so. It would be so useful for so many applications – I'm a parish priest and so I could use it to let people know what events are on, if a service is cancelled, the current prayer list, ... the applications would be endless. I'd definitely pay a couple of hundred dollars per device for a solid version of such a thing, if it could be mounted and then recharged every month or two.

angrygoat: 多么巧妙地利用技术来支持某人；让他们知道他们是被爱的，尽管（和关于）他们受到了严重的伤害 这让我想起了一个愿望：；我有很长一段时间了：一个简单的、壁挂式的eInk设备，可以配置一个URL（+wifi creds）并渲染一个markdown文件，大约每小时刷新一次。它对许多应用程序都非常有用——我；我是一名教区牧师，所以我可以用它来让人们知道正在进行什么活动，如果服务被取消，当前的祈祷清单。。。应用程序将是无穷无尽的。我；如果可以安装，然后每一两个月充电一次，那么每台设备肯定要花几百美元才能买到这种东西的稳定版本。

te0006: I wish this had come up on HN (or I had had that idea myself) some years ago when my mother suffered from that same cruel condition, for the last four years of her life. With her body, all her older memories and her considerable intelligence largely intact, she had multiple moments of clarity every single day, in which she fully realized the terrible and hopeless situation she was in. But of course, within seconds this thought and any decisions she might have derived from it dissolved in the black hole of her defective short-term memory. So she would not even have had the ability to take her own life to end this if she wished so.
My brother and I tried many things to improve her life somewhat, only very few of those were actually a bit succesful. Two of them were digital gadgets, which we selected to provide some benefit without or at least with just very simple interactions: The best one was an LCD "picture frame" the only feature of which was to show an infinite loop of family photos stored on its SD card - she came to really like it and have it switched on quite consistently. The second one was an MP3 speaker which had a few hours of her favorite music on an SD card as well, and which could be used largely like a radio, just by pressing its play/stop button and volume buttons. This latter one she managed to enjoy at least from time to time.
Best wishes to the author and his mom, and everyone in a similar situation.

te0006: 我希望几年前我母亲在生命的最后四年里也遭受着同样的残酷折磨时，HN（或者我自己也有过这样的想法）也能想到这一点。由于她的身体、所有的旧记忆和相当大的智力基本完好无损，她每天都有很多清晰的时刻，在这些时刻，她完全意识到自己所处的可怕和绝望的境地。但当然，几秒钟内，这种想法和她可能从中得出的任何决定都消失在她有缺陷的短期记忆的黑洞中。所以，如果她愿意，她甚至没有能力结束自己的生命。我和哥哥尝试了很多事情来改善她的生活，但实际上只有很少几件事有点成功。其中两个是数字设备，我们选择这些设备是为了在没有或至少只有非常简单的交互的情况下提供一些好处：最好的一个是液晶显示器&quot；“相框”；它的唯一特点是显示存储在SD卡上的无限循环的家庭照片——她开始非常喜欢它，并一直打开它。第二个是MP3扬声器，SD卡上也有几个小时她最喜欢的音乐，只需按下播放按钮，它就可以像收音机一样使用；停止按钮和音量按钮。后一个她设法享受至少不时。向作者和他的母亲，以及处于类似情况的每个人致以最良好的祝愿。

frereubu: This is one of the few HN articles that have profoundly moved me. Such a beautiful and simple use of technology to make a clear and big improvement in someone's life.As a side note on his mother remembering that the tablet exists, it sounds like she has amnesia quite like Henry Molaison, a famous case study in neuropathology. He had very specific brain damage that seemingly stopped him forming new memories in the same way as OP's mother, but studies showed that he could remember some things, just not consciously. So for example he would have warm feelings towards people who'd been caring for him despite not remembering them, and would also pick up card games more and more quickly as he played them repeatedly despite saying he didn't remember the game. OP's mother remembering the tablet sounds very similar, particularly when paired with the feeling of being remembered and loved by her children.

frereubu: 这是少数几篇深深打动我的HN文章之一；的生活 作为他母亲记住平板电脑存在的旁注，听起来她患有健忘症，就像神经病理学中著名的案例研究Henry Molaison一样。他有非常特殊的脑损伤，这似乎阻止了他以与OP相同的方式形成新的记忆；但研究表明，他能记住一些事情，只是不是有意识的。因此，例如，他会对那些；尽管我不记得了，但我一直在照顾他，而且随着他反复玩纸牌游戏，我也会越来越快地拿起纸牌游戏，尽管他说他不记得了；我不记得那场比赛了。OP；她的母亲回忆起平板电脑听起来非常相似，尤其是当与被孩子们记住和爱的感觉结合在一起时。

bregma: My wife acquired anterograde amnesia after a car accident. This device may or may not have worked for her: she would probably have discovered the device anew every time (as in, every 10 minutes or so), although she would probably be pleased each time.Thankfully she fully recovered after a few weeks. It takes a lot of patience to deal with someone like that, and you could tell it frequently caused a lot of frustration on her part. Every 10 minutes or so in fact.

bregma: 我妻子在一次车祸后得了顺行性健忘症。这个设备可能对她有效，也可能无效：她可能每次都会重新发现这个设备（比如，大约每10分钟一次），尽管她每次都会很高兴 幸运的是，几周后她完全康复了。与这样的人打交道需要极大的耐心，你可以看出这经常让她感到沮丧。事实上，每10分钟左右。

albert_e: > One small challenge was maximizing the size of the message text. Sometimes a message is just a word or two; other times it might be several sentences. A single font size can’t accommodate such a wide range of text content. I couldn’t find a pure CSS way to automatically maximize font size so that a text element with word wrapping would display without clipping.> I ended up writing a small JavaScript function to maximize font size: it makes the text invisible (via CSS visibility: hidden), tries displaying the text at a very large size, and then tries successively smaller font sizes until it finds a size that lets all the text fit. It then makes the text visible again.Wow -- not just for accessibility but this seems like a very useful feature to have in native CSS.Nice find.Overall such a heartwarming use of technology. Love.

albert_e: &gt；一个小挑战是最大化消息文本的大小。有时，一条信息只是一两个字；其他时候，它可能是几个句子。单一字体大小无法容纳如此广泛的文本内容。我找不到一种纯CSS的方法来自动最大化字体大小，这样带有换行的文本元素就可以在不剪切的情况下显示 &gt；我最终编写了一个小的JavaScript函数来最大化字体大小：它使文本不可见（通过CSS可见性：隐藏），尝试以非常大的大小显示文本，然后尝试连续减小字体大小，直到找到一个适合所有文本的大小。然后，它使文本再次可见 哇——不仅是为了可访问性，而且这似乎是原生CSS中非常有用的功能 不错的发现 总的来说，这是一种令人温暖的技术使用。爱。